Once Upon A Gene
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Once Upon A Gene

Once Upon A Gene Podcast - click on an episode below to start listening!

ONCE UPON A GENE - Episode 110 - Turkey Soup for the Soul and Stories About Rare Unicorns Who Show Up in Our Lives
ONCE UPON A GENE - Episode 110 - Turkey Soup for the Soul and Stories About Rare Unicorns Who Show Up in Our Lives
Rare Disease PodcastEffie ParksNovember 25, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 109 - A Rare Collection - What I Know For Sure with Noah Siedman, Grayson Skibington and Nash Hawkins
ONCE UPON A GENE - Episode 109 - A Rare Collection - What I Know For Sure with Noah Siedman, Grayson Skibington and Nash Hawkins
Rare Disease PodcastEffie ParksNovember 18, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 034 - Find the Connection
ONCE UPON A GENE - EFFISODE 034 - Find the Connection
Effie ParksNovember 16, 2021
ONCE UPON A GENE - Episode 108 - Finding Hope: From Diagnosis to Action - LMNA Related Congenital Muscular Dystrophy - Hannah Lowe
ONCE UPON A GENE - Episode 108 - Finding Hope: From Diagnosis to Action - LMNA Related Congenital Muscular Dystrophy - Hannah Lowe
Rare Disease PodcastEffie ParksNovember 11, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 107 - The Joy Doesn't Need to be Ambiguous Even Though The Grief Is - Rare MERRF Syndrome Mom Jessica Fein
ONCE UPON A GENE - Episode 107 - The Joy Doesn't Need to be Ambiguous Even Though The Grief Is - Rare MERRF Syndrome Mom Jessica Fein
Rare Disease PodcastEffie ParksNovember 4, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - EFFISODE 033 - Cinderella, Cinderella
ONCE UPON A GENE - EFFISODE 033 - Cinderella, Cinderella
Effie ParksNovember 2, 2021
ONCE UPON A GENE - Episode 106 - Rare Book Club with Co-Host Patti Hall - Featuring Heather Lanier and Her Book, Raising a Rare Girl
ONCE UPON A GENE - Episode 106 - Rare Book Club with Co-Host Patti Hall - Featuring Heather Lanier and Her Book, Raising a Rare Girl
Rare Disease PodcastEffie ParksOctober 28, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 105 - Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona
ONCE UPON A GENE - Episode 105 - Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona
Rare Disease PodcastEffie ParksOctober 21, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 032 - Two Disabled Dudes
ONCE UPON A GENE - EFFISODE 032 - Two Disabled Dudes
Effie ParksOctober 19, 2021
ONCE UPON A GENE - Episode 104 - A Rare Collection- Stories of Courage with Felix Townsin, Erica Jolene Stearns, Mahrynn McLaughlin and Brianna Colquitt
ONCE UPON A GENE - Episode 104 - A Rare Collection- Stories of Courage with Felix Townsin, Erica Jolene Stearns, Mahrynn McLaughlin and Brianna Colquitt
Rare Disease PodcastEffie ParksOctober 14, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 103 - How We Can Balance and Understand the Unique Struggles We Face with Caregiver Fatigue, Compassion Fatigue and Decision Fatigue with Counselor Rose Reif
ONCE UPON A GENE - Episode 103 - How We Can Balance and Understand the Unique Struggles We Face with Caregiver Fatigue, Compassion Fatigue and Decision Fatigue with Counselor Rose Reif
Rare Disease PodcastEffie ParksOctober 7, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 031 - The Kids Do NAPA Center in Los Angeles
ONCE UPON A GENE - EFFISODE 031 - The Kids Do NAPA Center in Los Angeles
Effie ParksOctober 5, 2021
ONCE UPON A GENE - Episode 102 - Strength: How We View It, Define It and How It Changes As We Move Through Life With Rare Disease and Chronic Illness - Marni Cartelli
ONCE UPON A GENE - Episode 102 - Strength: How We View It, Define It and How It Changes As We Move Through Life With Rare Disease and Chronic Illness - Marni Cartelli
Rare Disease PodcastEffie ParksSeptember 30, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 101 - Finding Beauty and Connection When Raising a Medically Complex Kiddo with Melanie Dimmitt - Author of Special
ONCE UPON A GENE - Episode 101 - Finding Beauty and Connection When Raising a Medically Complex Kiddo with Melanie Dimmitt - Author of Special
Rare Disease PodcastEffie ParksSeptember 23, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 030 - Road Trip to NAPA Center
ONCE UPON A GENE - EFFISODE 030 - Road Trip to NAPA Center
Effie ParksSeptember 21, 2021
ONCE UPON A GENE - Episode 100 - A Rare Collection- Because of You with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point
ONCE UPON A GENE - Episode 100 - A Rare Collection- Because of You with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point
Rare Disease PodcastEffie ParksSeptember 16, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 099 - Strength and Inspiration Found Through Rare Disease for Advocacy and a Patient First Movement with CEO of Optime Care - Donovan Quill
ONCE UPON A GENE - Episode 099 - Strength and Inspiration Found Through Rare Disease for Advocacy and a Patient First Movement with CEO of Optime Care - Donovan Quill
Rare Disease PodcastEffie ParksSeptember 9, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 029 - Ford Goes to Kindergarten
ONCE UPON A GENE - EFFISODE 029 - Ford Goes to Kindergarten
Effie ParksSeptember 7, 2021
ONCE UPON A GENE - Episode 098 - Five Common Errors Made by Recently Diagnosed, Emotionally Overwhelmed Families Without Monetary Resources or Connections with Perlara Founder and CEO
ONCE UPON A GENE - Episode 098 - Five Common Errors Made by Recently Diagnosed, Emotionally Overwhelmed Families Without Monetary Resources or Connections with Perlara Founder and CEO
Rare Disease PodcastEffie ParksSeptember 2, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 097 - A Mother's Story of Finding Your People, Accepting a Diagnosis and Loving Her Kid for Exactly Who She is with Jordan's Guardian Angels Mom - Carole Bakhos
ONCE UPON A GENE - Episode 097 - A Mother's Story of Finding Your People, Accepting a Diagnosis and Loving Her Kid for Exactly Who She is with Jordan's Guardian Angels Mom - Carole Bakhos
Rare Disease PodcastEffie ParksAugust 26, 2021Once Upon A GeneRare Disease, Special Needs Podcast
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