Self-Care Brought Me In and Self-Care Made Me Run Out Rare DiseaseEffie ParksDecember 5, 2023self-care, mental health, rare disease, ctnnb1, rare mom, genetic testingComment
From Challenges to Masterpieces: The Remarkable Tale of Ford's Triumphs Effie ParksAugust 9, 2023rare disease podcast, rare disease, ctnnb1, caregiver, special needs Comments
Sharing Rare Disease Stories Is An Act Of Hope, For All of Us. Rare DiseaseEffie ParksApril 22, 2023rare disease podcast
The Gift of Inclusion Rare DiseaseEffie ParksSeptember 30, 2022Rare disease dad, rare disease podcast, cerebral palsy, special needs, inclusion Comment
THE TREACHERY OF MEMORY WHILE GRIEVING Effie ParksJune 30, 2022Grieving, Grief, Rare Disease, Menkes, Child Loss, rare disease podcast, Rare disease dad, copper, caregiver Comment
Life Under The Looking Glass mental healthEffie ParksApril 30, 2022mental health, Rare Disease, post partum, caregiver, special needs, rare disease podcast, special needs podcast Comments
No Going Back To The Future Effie ParksAugust 12, 2021Once Upon A GeneRare Disease, CTNNB1, Parkinsons, michael j fox Comments
