Once Upon A Gene
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SDRareDiseaseDayWelcomeMerchPodcastEventsBlogAboutPRESS Contact
Once Upon A Gene
When the Diagnosis Comes: A Journey Through Shock, Grief, and Hope
When the Diagnosis Comes: A Journey Through Shock, Grief, and Hope
Effie ParksMay 9, 2025
Grief as a Constant Companion - The Presence of Unseen Mourning
Grief as a Constant Companion - The Presence of Unseen Mourning
Effie ParksMarch 18, 2025Comment
 Excuse You: A Rare and Wonderful New Year’s Milestone
Excuse You: A Rare and Wonderful New Year’s Milestone
Effie ParksJanuary 2, 2025
Self-Care Brought Me In and Self-Care Made Me Run Out
Self-Care Brought Me In and Self-Care Made Me Run Out
Rare DiseaseEffie ParksDecember 5, 2023self-care, mental health, rare disease, ctnnb1, rare mom, genetic testing Comment
The Once Upon a Gene ⭐Rare Disease Manifesto ⭐
The Once Upon a Gene ⭐Rare Disease Manifesto ⭐
Effie ParksNovember 15, 2023
Sometimes There Is No Silver Lining
Sometimes There Is No Silver Lining
Effie ParksSeptember 30, 2023
From Challenges to Masterpieces: The Remarkable Tale of Ford's Triumphs
From Challenges to Masterpieces: The Remarkable Tale of Ford's Triumphs
Effie ParksAugust 9, 2023rare disease podcast, rare disease, ctnnb1, caregiver, special needs Comments
Sharing Rare Disease Stories Is An Act Of Hope, For All of Us.
Sharing Rare Disease Stories Is An Act Of Hope, For All of Us.
Rare DiseaseEffie ParksApril 22, 2023rare disease podcast
A Wave of Emotions
A Wave of Emotions
Effie ParksNovember 17, 2022 Comment
The Gift of Inclusion
The Gift of Inclusion
Rare DiseaseEffie ParksSeptember 30, 2022Rare disease dad, rare disease podcast, cerebral palsy, special needs, inclusion Comment
THE TREACHERY OF MEMORY WHILE GRIEVING
THE TREACHERY OF MEMORY WHILE GRIEVING
Effie ParksJune 30, 2022Grieving, Grief, Rare Disease, Menkes, Child Loss, rare disease podcast, Rare disease dad, copper, caregiver Comments
Life Under The Looking Glass
Life Under The Looking Glass
mental healthEffie ParksApril 30, 2022mental health, Rare Disease, post partum, caregiver, special needs, rare disease podcast, special needs podcast Comments
No Going Back To The Future
No Going Back To The Future
Effie ParksAugust 12, 2021Once Upon A GeneRare Disease, CTNNB1, Parkinsons, michael j fox Comments

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