In the Press
BEYOND THE DIAGNOSIS
March, 2022
BUMP IN THE ROAD- Effie Parks: Being a Mom to a Disabled Child
December 3, 2021
HEALTHCARE IT TODAY- Better Understand the Patient and Caregiver Perspective
January 27, 2022
INSIDE PRECISION MEDICINE- The Lighthouse
December 1, 2021
PODCAST MAGAZINE- 2022 40 Under 40 in Podcasting
April 4, 2022
THE HEALTH DESIGN PODCAST- Effie Parks, Patient Advocate
January, 2022
HIT LIKE A GIRL POD- HITea with Grace
November 29, 2021
HEALTH PODCAST NETWORK-Out of Patients
March 22, 2022
COEUR d’ALENE/POST FALLS PRESS- Ford Tough
December 15, 2021
CHILD LIFE ON CALL- The Dad’s Perspective: A Son with a Rarer Genetic Disease
October 27, 2021
BRAVE TOGETHER- When You Feel Betrayed by the Professionals
October, 2021
THE VIRTUAL CAMPFIRE- Bringing Out the Strength in Others in Combating Rare Diseases with Effie Parks
April 13, 2021
EDU ME- Special Needs Children, Parenting, and Self Care
February 23, 2021
HEALTH UNION- 10th Annual WEGO Health Awards Winners
September 28, 2021
MERCER ISLAND REPORTER- Residents Show Their Stripes on Rare Disease Day
March 2, 2021
MERCER ISLAND REPORTER- Islanders Embrace Families Whose Children Have Rare Diseases
February 12, 2021
RARE VOICES- Effie Parks, Podcast Host, Once Upon A Gene, Mother To A Rare Disease
July 22, 2021
FINDING HAPPY- Power of Connection and Podcasts
March 1, 2021
SEATTLE’S CHILD- Mercer Island Mom Uses Storytelling Talents to Make World a More Inclusive Place
February 10, 2021
RARE MAMAS- Lighting the way with Once Upon a Gene Podcast Host Effie Parks
July 7, 2021
KANTAR- Living with CTNNB1 Syndrome
February 25, 2021
BLOODSTREAM- Hemlibra in Canada, Amy’s Birds, and Once Upon A Genes’ Effie Parks
February 5, 2021
CHILD LIFE ON CALL- Effie's Story - A Son with a Rare Disease, CTNNB1
January 27, 2021
TWO DISABLED DUDES- She Created What She Needed
November 23, 2020
BECAUSE WE ARE STONG- Effie Parks & Once Upon a Gene
November 17, 2020
FAMILY SUPPORT INSTITUTE OF BC- Finding a Balance While Being a Caregiver
November 17, 2020
MY MERCER ISLAND- Effie Parks’ Unexpected Encounter in Mercerdale Park Leads to Hope and Connection
November 17, 2020
CONVERSATIONS WITH KATY- Not Just Another Baby Story
September 30, 2020
OT4LYFE- Pediatric Therapy From the Parent’s Perspective with Effie Parks
September 28, 2020
GLOBAL GENES- Rare Together Watch Together: Film Selection from The Disorder Channel
September 16, 2020
THE RARE FAIR- Find Your People
September 3, 2020
THECHATCONNECTION- Back to School: Special Needs Edition
August 22, 2020
NORD- Stress Management: Emotional-Wellbeing for the Caregiver
July 19, 2020
CAUSEPODS- Shedding Light on Rare Genetic Disabilities with Effie Parks of Once Upon A Gene
May 7, 2020
MERCER ISLAND REPORTER- Mercer Island Family Raises Awareness for Rare, Undiagnosed Diseases
February 19, 2020
KING 5- Mercer Island Mom Creates Podcast to Build Healthy Dialogue About Kids with Disabilities
February 11, 2020
PATIENT STORIES- New in the Family: Ford and CTNNB1 with Effie Parks
February 5, 2020
MERCER ISLAND REPORTER- Mercer Island Mom Creates Podcast About Raising Children with Disabilities
January 16, 2020
