ONCE UPON A GENE - Episode 121 - Caregiver Mental Health and Physical Wellbeing with Advocate and Co-Founder of Hello Sleuth - Sehreen Noor Ali Rare Disease PodcastEffie ParksFebruary 10, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 120 - What Happens Now - Baby Boy is a Medical Miracle After Being Treated for Spinal Muscular Atrophy Type 1 with Kathryn Alexander Rare Disease PodcastEffie ParksFebruary 3, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 119 - One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn Alexander Rare Disease PodcastEffie ParksJanuary 27, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 118 - Ambiguous Medical Plans - How to Figure Out a System Even When it Seems Impossible with Parvathy Raman Krishnan Rare Disease PodcastEffie ParksJanuary 20, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 116 - A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke Rosen Rare Disease PodcastEffie ParksJanuary 6, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 115 - Create Conversation, Community, and Change with Author of Loving You Big - Leah Moore Rare Disease PodcastEffie ParksDecember 30, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 114 - The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman Rare Disease PodcastEffie ParksDecember 23, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 112 - Being Mindful of the Sibling Experience with Founder of We Are Brave Together - Jessica Patay Rare Disease PodcastEffie ParksDecember 9, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 111 - The Importance of Newborn Screening in Every State with ALD Alliance Founder Elisa Seeger Rare Disease PodcastEffie ParksDecember 2, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 110 - Turkey Soup for the Soul and Stories About Rare Unicorns Who Show Up in Our Lives Rare Disease PodcastEffie ParksNovember 25, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 108 - Finding Hope: From Diagnosis to Action - LMNA Related Congenital Muscular Dystrophy - Hannah Lowe Rare Disease PodcastEffie ParksNovember 11, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 107 - The Joy Doesn't Need to be Ambiguous Even Though The Grief Is - Rare MERRF Syndrome Mom Jessica Fein Rare Disease PodcastEffie ParksNovember 4, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 106 - Rare Book Club with Co-Host Patti Hall - Featuring Heather Lanier and Her Book, Raising a Rare Girl Rare Disease PodcastEffie ParksOctober 28, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
