Once Upon A Gene
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SDRareDiseaseDayWelcomeMerchPodcastEventsBlogAboutPRESS Contact
Once Upon A Gene

Once Upon A Gene Podcast - click on an episode below to start listening!

ONCE UPON A GENE - Episode 069 - Ben's Friends- A Rare Disease Social and Support Platform with Ben Munoz
ONCE UPON A GENE - Episode 069 - Ben's Friends- A Rare Disease Social and Support Platform with Ben Munoz
Rare Disease PodcastEffie ParksFebruary 11, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 014 - A Child's Imagination
ONCE UPON A GENE - EFFISODE 014 - A Child's Imagination
Effie ParksFebruary 9, 2021
ONCE UPON A GENE - Episode 068 - Connecting the Dots From Patients to Researchers with Jason Colquitt - CEO of Across Healthcare
ONCE UPON A GENE - Episode 068 - Connecting the Dots From Patients to Researchers with Jason Colquitt - CEO of Across Healthcare
Rare Disease PodcastEffie ParksFebruary 4, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 067 - Hippotherapy and Adaptive Riding with Little Bit Therapeutic Riding Center
ONCE UPON A GENE - Episode 067 - Hippotherapy and Adaptive Riding with Little Bit Therapeutic Riding Center
Rare Disease PodcastEffie ParksJanuary 28, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 013 - Growth and Smash Cakes
ONCE UPON A GENE - EFFISODE 013 - Growth and Smash Cakes
Effie ParksJanuary 26, 2021
ONCE UPON A GENE - Episode 066 - Rare Mama - Nikki McIntosh - Navigating Life with Rare
ONCE UPON A GENE - Episode 066 - Rare Mama - Nikki McIntosh - Navigating Life with Rare
Rare Disease PodcastEffie ParksJanuary 21, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 065 - Beginner’s Guide to Rare Disease- Anecdotes for Those Early Days of Diagnosis - Daniel DeFabio
ONCE UPON A GENE - Episode 065 - Beginner’s Guide to Rare Disease- Anecdotes for Those Early Days of Diagnosis - Daniel DeFabio
Rare Disease PodcastEffie ParksJanuary 14, 2021Rare Disease, Blau Syndrome, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 012
ONCE UPON A GENE - EFFISODE 012
Effie ParksJanuary 12, 2021
ONCE UPON A GENE - EPISODE 064- Seth Rotberg Founder of Our Odyssey and His Mental Health Surrounding a Huntington’s Disease Diagnosis
ONCE UPON A GENE - EPISODE 064- Seth Rotberg Founder of Our Odyssey and His Mental Health Surrounding a Huntington’s Disease Diagnosis
Rare Disease PodcastEffie ParksJanuary 7, 2021Rare Disease, Blau Syndrome, Special Needs Podcast
ONCE UPON A GENE - EPISODE 063 - The Life of an Angel Diagnosed with Blau Syndrome with Cheryl-Lynn Townsin
ONCE UPON A GENE - EPISODE 063 - The Life of an Angel Diagnosed with Blau Syndrome with Cheryl-Lynn Townsin
Rare Disease PodcastEffie ParksDecember 31, 2020Rare Disease, Blau Syndrome, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 011
ONCE UPON A GENE - EFFISODE 011
Effie ParksDecember 29, 2020
ONCE UPON A GENE - EPISODE 062 - Cookies4Cures with Dana Perella
ONCE UPON A GENE - EPISODE 062 - Cookies4Cures with Dana Perella
Effie ParksDecember 24, 2020
ONCE UPON A GENE - EPISODE 061 - The Glass Child - Being a Sibling to My Rare Disease Sisters with Madison McLaughlin
ONCE UPON A GENE - EPISODE 061 - The Glass Child - Being a Sibling to My Rare Disease Sisters with Madison McLaughlin
Effie ParksDecember 17, 2020
ONCE UPON A GENE - EFFISODE 010
ONCE UPON A GENE - EFFISODE 010
Effie ParksDecember 15, 2020
ONCE UPON A GENE - EPISODE 060 - Pediatric Occupational Therapy with OT4Lyfe - Sarah Putt
ONCE UPON A GENE - EPISODE 060 - Pediatric Occupational Therapy with OT4Lyfe - Sarah Putt
Effie ParksDecember 10, 2020
ONCE UPON A GENE - EPISODE 059 - Palliative Care & Courageous Parents Network with Founder Blyth Lord
ONCE UPON A GENE - EPISODE 059 - Palliative Care & Courageous Parents Network with Founder Blyth Lord
Effie ParksDecember 3, 2020
ONCE UPON A GENE - EFFISODE 009
ONCE UPON A GENE - EFFISODE 009
Effie ParksDecember 1, 2020
ONCE UPON A GENE - EPISODE 058 - Turkey Soup for the Soul
ONCE UPON A GENE - EPISODE 058 - Turkey Soup for the Soul
Effie ParksNovember 26, 2020
ONCE UPON A GENE - EPISODE 057 - SLC13A5 - TESS Research Foundation with Kim Nye
ONCE UPON A GENE - EPISODE 057 - SLC13A5 - TESS Research Foundation with Kim Nye
Effie ParksNovember 19, 2020
ONCE UPON A GENE - EFFISODE 008
ONCE UPON A GENE - EFFISODE 008
Effie ParksNovember 17, 2020
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