Once Upon A Gene
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SDRareDiseaseDay Welcome Merch Podcast Events Blog About PRESS Contact
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SDRareDiseaseDayWelcomeMerchPodcastEventsBlogAboutPRESS Contact
Once Upon A Gene

Once Upon A Gene Podcast - click on an episode below to start listening!

ONCE UPON A GENE - EPISODE 056 - Rare Leader Patricia Weltin, CEO, Beyond the Diagnosis
ONCE UPON A GENE - EPISODE 056 - Rare Leader Patricia Weltin, CEO, Beyond the Diagnosis
Effie ParksNovember 12, 2020
ONCE UPON A GENE - EPISODE 055 - One Woman’s Kindness Sparks a Neighborhood To Do the Same
ONCE UPON A GENE - EPISODE 055 - One Woman’s Kindness Sparks a Neighborhood To Do the Same
Effie ParksNovember 5, 2020
ONCE UPON A GENE - EFFISODE 007
ONCE UPON A GENE - EFFISODE 007
Effie ParksNovember 3, 2020
ONCE UPON A GENE - EPISODE 054 - RARE - A Brand with a Purpose - Theresa Thomas and Kristine Hoestermann
ONCE UPON A GENE - EPISODE 054 - RARE - A Brand with a Purpose - Theresa Thomas and Kristine Hoestermann
Effie ParksOctober 29, 2020
ONCE UPON A GENE - EPISODE 053 - Living with Chronic Pain - International Pain Foundation President Barby Ingle
ONCE UPON A GENE - EPISODE 053 - Living with Chronic Pain - International Pain Foundation President Barby Ingle
Effie ParksOctober 22, 2020
ONCE UPON A GENE - EFFISODE 006
ONCE UPON A GENE - EFFISODE 006
Effie ParksOctober 20, 2020
ONCE UPON A GENE - EPISODE 052 - Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy and Owning Your Story
ONCE UPON A GENE - EPISODE 052 - Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy and Owning Your Story
Effie ParksOctober 15, 2020
ONCE UPON A GENE - EPISODE 051 - Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
ONCE UPON A GENE - EPISODE 051 - Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
Effie ParksOctober 8, 2020
ONCE UPON A GENE - EFFISODE 005
ONCE UPON A GENE - EFFISODE 005
Effie ParksOctober 6, 2020
ONCE UPON A GENE - EPISODE 050 - Reflecting on 50 Episodes with Effie and Casey
ONCE UPON A GENE - EPISODE 050 - Reflecting on 50 Episodes with Effie and Casey
Effie ParksOctober 1, 2020
ONCE UPON A GENE - EPISODE 049 -  Thanatophoric Skeletal Dysplasia with Ashequka Lacey
ONCE UPON A GENE - EPISODE 049 - Thanatophoric Skeletal Dysplasia with Ashequka Lacey
Effie ParksSeptember 24, 2020
ONCE UPON A GENE - EFFISODE 004
ONCE UPON A GENE - EFFISODE 004
Effie ParksSeptember 22, 2020
ONCE UPON A GENE - EPISODE 048 -  What is Chronically Surviving with Marcelle Longlade
ONCE UPON A GENE - EPISODE 048 - What is Chronically Surviving with Marcelle Longlade
Effie ParksSeptember 17, 2020
ONCE UPON A GENE - EPISODE 047 -  Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter
ONCE UPON A GENE - EPISODE 047 - Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter
Effie ParksSeptember 10, 2020
ONCE UPON A GENE - EFFISODE 003
ONCE UPON A GENE - EFFISODE 003
Effie ParksSeptember 8, 2020
ONCE UPON A GENE - EPISODE 046 -  A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
ONCE UPON A GENE - EPISODE 046 - A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
Effie ParksSeptember 3, 2020
ONCE UPON A GENE - EPISODE 045 - Two Disabled Dudes - Kyle Bryant and Sean Baumstark
ONCE UPON A GENE - EPISODE 045 - Two Disabled Dudes - Kyle Bryant and Sean Baumstark
Effie ParksAugust 27, 2020
ONCE UPON A GENE - BONUS EPISODE - Rare Together Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
ONCE UPON A GENE - BONUS EPISODE - Rare Together Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
Effie ParksAugust 26, 2020
ONCE UPON A GENE - EFFISODE 002
ONCE UPON A GENE - EFFISODE 002
Effie ParksAugust 24, 2020
ONCE UPON A GENE - EPISODE 044 - A Mother’s Crusade to Find a Cure for Her Son - Amber Freed
ONCE UPON A GENE - EPISODE 044 - A Mother’s Crusade to Find a Cure for Her Son - Amber Freed
Effie ParksAugust 20, 2020
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