Once Upon A Gene
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SDRareDiseaseDay Welcome Merch Podcast Events Blog About PRESS Contact
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SDRareDiseaseDayWelcomeMerchPodcastEventsBlogAboutPRESS Contact
Once Upon A Gene

Once Upon A Gene Podcast - click on an episode below to start listening!

ONCE UPON A GENE - EPISODE 043 - David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action
ONCE UPON A GENE - EPISODE 043 - David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action
Effie ParksAugust 13, 2020
ONCE UPON A GENE - EFFISODE 001
ONCE UPON A GENE - EFFISODE 001
Effie ParksAugust 11, 2020
ONCE UPON A GENE - EPISODE 042 - WSU ROAR - Responsibility, Opportunities, Advocacy and Respect with Lisa Henniger
ONCE UPON A GENE - EPISODE 042 - WSU ROAR - Responsibility, Opportunities, Advocacy and Respect with Lisa Henniger
Effie ParksAugust 6, 2020
ONCE UPON A GENE - EPISODE 041 - Time is Brain: SYNGAP Research Fund with Mike Graglia
ONCE UPON A GENE - EPISODE 041 - Time is Brain: SYNGAP Research Fund with Mike Graglia
Effie ParksJuly 30, 2020
ONCE UPON A GENE - EPISODE 040 - Physical and Emotional Well-Being for the Caregiver with Tyra Skibington
ONCE UPON A GENE - EPISODE 040 - Physical and Emotional Well-Being for the Caregiver with Tyra Skibington
Effie ParksJuly 23, 2020
ONCE UPON A GENE - EPISODE 039 - Next Steps: A Journey Through CRPS to an Above-the-Knee Amputee with Whitney Lavender
ONCE UPON A GENE - EPISODE 039 - Next Steps: A Journey Through CRPS to an Above-the-Knee Amputee with Whitney Lavender
Effie ParksJuly 16, 2020
ONCE UPON A GENE - EPISODE 038 - Rare Like Us with Taylor Kane
ONCE UPON A GENE - EPISODE 038 - Rare Like Us with Taylor Kane
Effie ParksJuly 9, 2020
ONCE UPON A GENE - EPISODE 037 - Founder of LakiKid: Sensory Tools for Home and Classroom with Jason Hsieh
ONCE UPON A GENE - EPISODE 037 - Founder of LakiKid: Sensory Tools for Home and Classroom with Jason Hsieh
Effie ParksJuly 2, 2020
ONCE UPON A GENE - EPISODE 036 - Anna Laurent on Alagille Syndrome and Her Road to Advocacy
ONCE UPON A GENE - EPISODE 036 - Anna Laurent on Alagille Syndrome and Her Road to Advocacy
Effie ParksJune 25, 2020
ONCE UPON A GENE - EPISODE 035 - Sage Graves - Estate Planning, Guardianships, Special Needs Trusts
ONCE UPON A GENE - EPISODE 035 - Sage Graves - Estate Planning, Guardianships, Special Needs Trusts
Effie ParksJune 18, 2020
ONCE UPON A GENE - EPISODE 034 - The Ladies Behind the Edits
ONCE UPON A GENE - EPISODE 034 - The Ladies Behind the Edits
Effie ParksJune 11, 2020
ONCE UPON A GENE - EPISODE 033 - Loving Large: A Mother's Rare Disease Memoir
ONCE UPON A GENE - EPISODE 033 - Loving Large: A Mother's Rare Disease Memoir
Effie ParksJune 8, 2020
ONCE UPON A GENE - In Loving Memory of Lucas DeFabio
ONCE UPON A GENE - In Loving Memory of Lucas DeFabio
Effie ParksJune 6, 2020
ONCE UPON A GENE - EPISODE 032 - Beyond Quarantine: Acceptance, Empathy and a Better Normal
ONCE UPON A GENE - EPISODE 032 - Beyond Quarantine: Acceptance, Empathy and a Better Normal
Effie ParksMay 28, 2020
ONCE UPON A GENE - EPISODE 031 - Quarantine - What We're Missing, What We're Not, and What We Hope Sticks Around
ONCE UPON A GENE - EPISODE 031 - Quarantine - What We're Missing, What We're Not, and What We Hope Sticks Around
Effie ParksMay 21, 2020
ONCE UPON A GENE - EPISODE 030 - Trust Your Instincts; An Early Intervention Can Save Your Life
ONCE UPON A GENE - EPISODE 030 - Trust Your Instincts; An Early Intervention Can Save Your Life
Effie ParksMay 14, 2020
ONCE UPON A GENE - EPISODE 029 - Put Your Own Oxygen Mask on First
ONCE UPON A GENE - EPISODE 029 - Put Your Own Oxygen Mask on First
Effie ParksMay 7, 2020
ONCE UPON A GENE - EPISODE 028 - Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival
ONCE UPON A GENE - EPISODE 028 - Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival
Effie ParksApril 30, 2020
ONCE UPON A GENE - EPISODE 027 - Therapy Check-in with Rose Reif
ONCE UPON A GENE - EPISODE 027 - Therapy Check-in with Rose Reif
Effie ParksApril 23, 2020
ONCE UPON A GENE - EPISODE 026 - How Our Rare Kids Can Shape Us
ONCE UPON A GENE - EPISODE 026 - How Our Rare Kids Can Shape Us
Effie ParksApril 16, 2020
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