ONCE UPON A GENE - Episode 129 - Self Care for Your Healthcare with Ehlers Danlos Patient and Miss Wheelchair Washington - Sarah Tompkins Rare Disease PodcastEffie ParksApril 7, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 128 - Sisters’ Hope Foundation President and Founder Heidi Edwards on Recognizing ALSP Symptoms and the Importance of Genetic Testing Rare Disease PodcastEffie ParksMarch 31, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 127 - Building a Different Kind of Motherhood Experience Than We Had Anticipated with CDKL5 Deficiency Disorder Mom and Founder of Art For Hope Love Cure, Marissa Bishop Rare Disease PodcastEffie ParksMarch 30, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 126 - A Rare Collection - Unexpected Findings Rare Disease PodcastEffie ParksMarch 17, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 125 - A Very Rare and Very Real Adventure with DeSanto-Shinawi Syndrome Mom and Author of a Very Rare Adventure Katie Lloyd Rare Disease PodcastEffie ParksMarch 10, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 124 - Help Bring a Cure to GSD1B with Sophie's Hope Foundation Founder and Dadvocate Jamas LaFreniere Rare Disease PodcastEffie ParksMarch 3, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 123 - Figuring Out How to Infuse Meaning in the Days After the Loss of a Child Rare Disease PodcastEffie ParksFebruary 24, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 122 - A Rare Collection - This is Us Rare Disease PodcastEffie ParksFebruary 17, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 121 - Caregiver Mental Health and Physical Wellbeing with Advocate and Co-Founder of Hello Sleuth - Sehreen Noor Ali Rare Disease PodcastEffie ParksFebruary 10, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 120 - What Happens Now - Baby Boy is a Medical Miracle After Being Treated for Spinal Muscular Atrophy Type 1 with Kathryn Alexander Rare Disease PodcastEffie ParksFebruary 3, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 119 - One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn Alexander Rare Disease PodcastEffie ParksJanuary 27, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 118 - Ambiguous Medical Plans - How to Figure Out a System Even When it Seems Impossible with Parvathy Raman Krishnan Rare Disease PodcastEffie ParksJanuary 20, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 117 - A Rare Collection - New Beginnings Rare Disease PodcastEffie ParksJanuary 13, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 116 - A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke Rosen Rare Disease PodcastEffie ParksJanuary 6, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 115 - Create Conversation, Community, and Change with Author of Loving You Big - Leah Moore Rare Disease PodcastEffie ParksDecember 30, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 114 - The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman Rare Disease PodcastEffie ParksDecember 23, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 113 - A Rare Collection - Lullabies Rare Disease PodcastEffie ParksDecember 16, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 112 - Being Mindful of the Sibling Experience with Founder of We Are Brave Together - Jessica Patay Rare Disease PodcastEffie ParksDecember 9, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 111 - The Importance of Newborn Screening in Every State with ALD Alliance Founder Elisa Seeger Rare Disease PodcastEffie ParksDecember 2, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 110 - Turkey Soup for the Soul and Stories About Rare Unicorns Who Show Up in Our Lives Rare Disease PodcastEffie ParksNovember 25, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
