ONCE UPON A GENE - Episode 119 - One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn Alexander Rare Disease PodcastEffie ParksJanuary 27, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 118 - Ambiguous Medical Plans - How to Figure Out a System Even When it Seems Impossible with Parvathy Raman Krishnan Rare Disease PodcastEffie ParksJanuary 20, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 117 - A Rare Collection - New Beginnings Rare Disease PodcastEffie ParksJanuary 13, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 116 - A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke Rosen Rare Disease PodcastEffie ParksJanuary 6, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 115 - Create Conversation, Community, and Change with Author of Loving You Big - Leah Moore Rare Disease PodcastEffie ParksDecember 30, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 114 - The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman Rare Disease PodcastEffie ParksDecember 23, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 113 - A Rare Collection - Lullabies Rare Disease PodcastEffie ParksDecember 16, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 112 - Being Mindful of the Sibling Experience with Founder of We Are Brave Together - Jessica Patay Rare Disease PodcastEffie ParksDecember 9, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 111 - The Importance of Newborn Screening in Every State with ALD Alliance Founder Elisa Seeger Rare Disease PodcastEffie ParksDecember 2, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 110 - Turkey Soup for the Soul and Stories About Rare Unicorns Who Show Up in Our Lives Rare Disease PodcastEffie ParksNovember 25, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 109 - A Rare Collection - What I Know For Sure with Noah Siedman, Grayson Skibington and Nash Hawkins Rare Disease PodcastEffie ParksNovember 18, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 108 - Finding Hope: From Diagnosis to Action - LMNA Related Congenital Muscular Dystrophy - Hannah Lowe Rare Disease PodcastEffie ParksNovember 11, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 107 - The Joy Doesn't Need to be Ambiguous Even Though The Grief Is - Rare MERRF Syndrome Mom Jessica Fein Rare Disease PodcastEffie ParksNovember 4, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 106 - Rare Book Club with Co-Host Patti Hall - Featuring Heather Lanier and Her Book, Raising a Rare Girl Rare Disease PodcastEffie ParksOctober 28, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 105 - Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona Rare Disease PodcastEffie ParksOctober 21, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 104 - A Rare Collection- Stories of Courage with Felix Townsin, Erica Jolene Stearns, Mahrynn McLaughlin and Brianna Colquitt Rare Disease PodcastEffie ParksOctober 14, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 103 - How We Can Balance and Understand the Unique Struggles We Face with Caregiver Fatigue, Compassion Fatigue and Decision Fatigue with Counselor Rose Reif Rare Disease PodcastEffie ParksOctober 7, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 102 - Strength: How We View It, Define It and How It Changes As We Move Through Life With Rare Disease and Chronic Illness - Marni Cartelli Rare Disease PodcastEffie ParksSeptember 30, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 101 - Finding Beauty and Connection When Raising a Medically Complex Kiddo with Melanie Dimmitt - Author of Special Rare Disease PodcastEffie ParksSeptember 23, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 100 - A Rare Collection- Because of You with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point Rare Disease PodcastEffie ParksSeptember 16, 2021Rare Disease, Special Needs Podcast
