ONCE UPON A GENE - Episode 109 - A Rare Collection - What I Know For Sure with Noah Siedman, Grayson Skibington and Nash Hawkins Rare Disease PodcastEffie ParksNovember 18, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 108 - Finding Hope: From Diagnosis to Action - LMNA Related Congenital Muscular Dystrophy - Hannah Lowe Rare Disease PodcastEffie ParksNovember 11, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 107 - The Joy Doesn't Need to be Ambiguous Even Though The Grief Is - Rare MERRF Syndrome Mom Jessica Fein Rare Disease PodcastEffie ParksNovember 4, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 106 - Rare Book Club with Co-Host Patti Hall - Featuring Heather Lanier and Her Book, Raising a Rare Girl Rare Disease PodcastEffie ParksOctober 28, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 105 - Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona Rare Disease PodcastEffie ParksOctober 21, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 104 - A Rare Collection- Stories of Courage with Felix Townsin, Erica Jolene Stearns, Mahrynn McLaughlin and Brianna Colquitt Rare Disease PodcastEffie ParksOctober 14, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 103 - How We Can Balance and Understand the Unique Struggles We Face with Caregiver Fatigue, Compassion Fatigue and Decision Fatigue with Counselor Rose Reif Rare Disease PodcastEffie ParksOctober 7, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 102 - Strength: How We View It, Define It and How It Changes As We Move Through Life With Rare Disease and Chronic Illness - Marni Cartelli Rare Disease PodcastEffie ParksSeptember 30, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 101 - Finding Beauty and Connection When Raising a Medically Complex Kiddo with Melanie Dimmitt - Author of Special Rare Disease PodcastEffie ParksSeptember 23, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 100 - A Rare Collection- Because of You with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point Rare Disease PodcastEffie ParksSeptember 16, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 099 - Strength and Inspiration Found Through Rare Disease for Advocacy and a Patient First Movement with CEO of Optime Care - Donovan Quill Rare Disease PodcastEffie ParksSeptember 9, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 098 - Five Common Errors Made by Recently Diagnosed, Emotionally Overwhelmed Families Without Monetary Resources or Connections with Perlara Founder and CEO Rare Disease PodcastEffie ParksSeptember 2, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 097 - A Mother's Story of Finding Your People, Accepting a Diagnosis and Loving Her Kid for Exactly Who She is with Jordan's Guardian Angels Mom - Carole Bakhos Rare Disease PodcastEffie ParksAugust 26, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 096 - Finding Peace and New Energy to Dig Deeper After 18 Years Undiagnosed with Billie Short Rare Disease PodcastEffie ParksAugust 19, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 095 - A Rare Collection- Skin in the Game with Adam Johnson, Nathan Peck and Marni Cartelli Rare Disease PodcastEffie ParksAugust 12, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 094 - The 12 Commandments to guide you when you're starting a rare disease patient advocacy group. With Nasha Fitter and Mike Graglia Rare Disease PodcastEffie ParksAugust 5, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 093 - Leading the World Gene Therapy Program for CTNNB1 With Fellow Rare Mama - Špela Miroševič Rare Disease PodcastEffie ParksJuly 29, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 092 - Enabling Rare Disease Treatments with Sanath Kumar Ramesh - Founder & CEO of OpenTreatments Rare Disease PodcastEffie ParksJuly 22, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff Rare Disease PodcastEffie ParksJuly 15, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D Rare Disease PodcastEffie ParksJuly 8, 2021Rare Disease, Special Needs Podcast
