ONCE UPON A GENE - EPISODE 231 - The Power of Genetic Diagnosis - More Than Just a Label Rare Disease PodcastEffie ParksJune 6, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 230 - Balancing Rare Disease Advocacy and Family - Navigating the Complexities and Embracing Imperfections with Nikki Stusick Rare Disease PodcastEffie ParksMay 23, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 229 - Uniting Strengths - Rare Disease Collaboration on a Shared Patient Registry Through Sanford Cords with Cure Mito and Hope for PDCD Rare Disease PodcastEffie ParksMay 16, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 228 - Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breathroughs, and the Every Cure Initiative with Dr. David Fajgenbaum Rare Disease PodcastEffie ParksMay 9, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 227 - Bringing Balance Back to the Language of Disability from The Special Needs Mom Podcast with Kara Ryska Rare Disease PodcastEffie ParksApril 25, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 226 - From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland Rare Disease PodcastEffie ParksApril 18, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 224 - The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed Rare Disease PodcastEffie ParksApril 4, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 223 - Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio Rare Disease PodcastEffie ParksMarch 28, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 222 - Krabbe Disease with Kasey Feldt Rare Disease PodcastEffie ParksMarch 21, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 221 - BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay Rare Disease PodcastEffie ParksMarch 14, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 220 - A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action Rare Disease PodcastEffie ParksMarch 7, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 219 - Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini Rare Disease PodcastEffie ParksFebruary 29, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 218 - James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child Rare Disease PodcastEffie ParksFebruary 22, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 217 - Uniting Science and Hope - COMBINEDBrain and its Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell Rare Disease PodcastEffie ParksFebruary 8, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 201 - Five Advocacy Aces Share Their Conference Commandments Rare Disease PodcastEffie ParksFebruary 1, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 216 - Soundtrack of Silence - Love, Loss, and a Playlist for Life with Neurofibromatosis Type 2 (NF2) Patient Advocate - Matt Hay Rare Disease PodcastEffie ParksJanuary 25, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 215 - Beyond the Crossroads- Rebuilding and Reclaiming Identity After Sacrificing Careers for Caregiving with Emily Crawford Rare Disease PodcastEffie ParksJanuary 18, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 214 - A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari Rare Disease PodcastEffie ParksJanuary 11, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 213 - Finding Strength In Every Step Rare Disease PodcastEffie ParksJanuary 8, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 211 - The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia Rare Disease PodcastEffie ParksDecember 14, 2023Rare Disease, Special Needs Podcast
