ONCE UPON A GENE - EPISODE 214 - A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari Rare Disease PodcastEffie ParksJanuary 11, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 213 - Finding Strength In Every Step Rare Disease PodcastEffie ParksJanuary 8, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 211 - The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia Rare Disease PodcastEffie ParksDecember 14, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 210 - GeneDX - A Genetic Diagnosis Matters with Gay Grossman and Paul Kruszka Rare Disease PodcastEffie ParksDecember 8, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 209 - A Leap of Faith - Rare Disease Moms on the Bittersweet Joy of New Babies Rare Disease PodcastEffie ParksNovember 30, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 208 - Turkey Soup for the Soul Rare Disease PodcastEffie ParksNovember 23, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 207 - Breaking Barriers in Brain Health with Tracy Dixon-Salazar, PhD Rare Disease PodcastEffie ParksNovember 16, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 206 - Policy as a Pathway - Advocating for Rare Disease, Cri Du Chat, Disability and Palliative Care with Lindsey Topping-Schuetz Rare Disease PodcastEffie ParksNovember 9, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 205 - Mastering the Art of the Supermarket Answer When Someone Asks, How Are You with Jennifer Siedman Rare Disease PodcastEffie ParksNovember 2, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 204 - From Heartbreak to Hope with Pat Furlong Rare Disease PodcastEffie ParksOctober 27, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 203 - These Two Rare Disease Parents Never Met Until Now and Have Everything In Common - Chronic Compassion Chronicles with Kim Gilsdorf and Daniel DeFabio Rare Disease PodcastEffie ParksOctober 19, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 202 - Utilizing Child Life Specialists - Empowering Rare Disease and Medically Complex Families in Hospitals Nationwide with Child Life On Call Founder - Katie Taylor Rare Disease PodcastEffie ParksOctober 12, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 201 - Five Advocacy Aces Share Their Conference Commandments Rare Disease PodcastEffie ParksOctober 5, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 200 - Fundraising Strategies for Patient Advocacy Organizations Raising Money for Rare Disease Research with Lindsay Stevens Rare Disease PodcastEffie ParksSeptember 28, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 199 - Navigating as a Rare Mom - Expert Insights into Special Needs Financial Planning with Mary McDirmid from Special Abilities Network Rare Disease PodcastEffie ParksSeptember 21, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 198 - Advocating with Heart - Striking the Balance Between Medical Insights and Personal Narratives - A Tribute to Valerie Marie with RING14 Co-Founder Yssa Dean DeWoody Rare Disease PodcastEffie ParksSeptember 14, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 197 - Rare Disease Dad Chronicles - Ryan Sheedy Rare Disease PodcastEffie ParksSeptember 7, 2023Rare Disease, Special Needs Podcast
