ONCE UPON A GENE - EPISODE 200 - Fundraising Strategies for Patient Advocacy Organizations Raising Money for Rare Disease Research with Lindsay Stevens Rare Disease PodcastEffie ParksSeptember 28, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 199 - Navigating as a Rare Mom - Expert Insights into Special Needs Financial Planning with Mary McDirmid from Special Abilities Network Rare Disease PodcastEffie ParksSeptember 21, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 198 - Advocating with Heart - Striking the Balance Between Medical Insights and Personal Narratives - A Tribute to Valerie Marie with RING14 Co-Founder Yssa Dean DeWoody Rare Disease PodcastEffie ParksSeptember 14, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 197 - Rare Disease Dad Chronicles - Ryan Sheedy Rare Disease PodcastEffie ParksSeptember 7, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 072 - Summer Camp for Medically Complex Kids Effie ParksSeptember 5, 2023
ONCE UPON A GENE - EPISODE 196 - School's Out for the Summer Rare Disease PodcastEffie ParksJuly 27, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 195 - Anecdotes From a Rare Disease Dad of an Adult Son with NR4A2 with Joe Henry Rare Disease PodcastEffie ParksJuly 20, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 194 - A Guide for Rare Disease Patient Advocacy Groups - Choosing and Designing a Patient Registry with Sophia Zilber Rare Disease PodcastEffie ParksJuly 13, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 193 - Claudia Gonzaga Jauregui Rare Disease PodcastEffie ParksJuly 6, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 192 - A Tale of a Gene Therapy that Cures her Daughter with AADC Deficiency with Carolina Moreno Rare Disease PodcastEffie ParksJune 22, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 191 - A Father's Day Special - Amidst the Storm Rare Disease PodcastEffie ParksJune 15, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 190 - SCN8A Rare Mom - The Inch Stone Project and DEE-P Connections Rare Disease PodcastEffie ParksJune 8, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 189 - Developing Personalized Therapeutics for Ultra Rare Patients with La Jolla Labs CEO Jeff Milton Rare Disease PodcastEffie ParksJune 1, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 188 - Rare Mom, Scientist and Co-Founder of the MAST Genes Research Foundation with Dr. Kim Aldinger Rare Disease PodcastEffie ParksMay 25, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 187 - Keep Digging Rare Disease PodcastEffie ParksMay 18, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 186 - The Tréxō Robot and the Many Benefits of this Technology for Kids with Disabilities with the Founder and CEO Manmeet Maggu Rare Disease PodcastEffie ParksMay 11, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 185 - The Outlet - How Chris Anselmo Used Writing to Connect with Other Rare Disease Families and Come to Terms with His Own Diagnosis of Limb-Girdle Muscular Dystrophy Rare Disease PodcastEffie ParksMay 4, 2023Rare Disease, Special Needs Podcast
