ONCE UPON A GENE - EPISODE 164 - The Clinical Pharmacist - Why They Are A VIP For Our Care Team and How We Can Get to Know Them - With NARS1 Rare Disease Mom - Rachel Heilmann Rare Disease PodcastEffie ParksDecember 8, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 163 - How Far We've Come - A Look at the FOXG1 Research and Family Conference with Rare Mama and Co Founder Nicole Johnson Rare Disease PodcastEffie ParksDecember 1, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 162 - Your Career and Personal Life Collide - Smith Magenis Rare Disease Dad Gianluca Pirozzi Rare Disease PodcastEffie ParksNovember 24, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 161 - A Rare Collection - Beep, Beep, Beep Rare Disease PodcastEffie ParksNovember 17, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 160 - A Mom's Advocacy For Her Son Who Has Hemophilia B Led to Her Own Diagnosis - With Stormy Johnson Rare Disease PodcastEffie ParksNovember 10, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 159 - Social Security Disability Revealed - Why It's So Hard to Access Benefits and What You Can Do About It with Spencer Bishins Rare Disease PodcastEffie ParksNovember 3, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 158 - Medical Student - Urvi Gupta Joins the Global Genes Rare Compassion Program with Alexions Patient Advocacy Champion Wendy Erler Rare Disease PodcastEffie ParksOctober 27, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 157 - The Effects of Rare Disease on Relationships and How to Cope When You and Your Partner Have Different Strategies with KCNH1 Founder and Rare Mama Michaelle Jinnette Rare Disease PodcastEffie ParksOctober 20, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 156 - A Rare Collection - Batten Down the Hatches Rare Disease PodcastEffie ParksOctober 13, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 155 - CRELD1 Dadvocate Paying the Ultimate Price - Seeking Diagnosis for His Two Children, and Raising Awareness with Adam Clatworthy Rare Disease PodcastEffie ParksOctober 6, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 154 - A Groundbreaking Gene Therapy In Record Time to Cure His Son with SPG50 Sets a New Course For Future Rare Disease Treatments with Terry Pirovalakis Rare Disease PodcastEffie ParksSeptember 29, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 153 - Improving Inclusion Practices in Schools with the Inclusive Educator - Bre Gastaldi Rare Disease PodcastEffie ParksSeptember 22, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 152 - A Rare Collection - Underestimated Rare Disease PodcastEffie ParksSeptember 15, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 151 - Rare Friends Forever - Hanging Out and Showing Some Love to Brene Brown with Katie Lloyd and Adam Johnson Rare Disease PodcastEffie ParksSeptember 8, 2022Rare Disease, Special Needs Podcast
