ONCE UPON A GENE - EPISODE 148 - Rare Disease Siblings, The Glass Children - Bulletproof and Shattered - With SMA Sibling Cara Freedman Rare Disease PodcastEffie ParksAugust 18, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 147 - A Rare Collection - Easier Said Than Done Rare Disease PodcastEffie ParksAugust 11, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 146 - When Your Career and Personal Life Collide - VP of Medical and Science Strategy and Head of Syneos Health's Rare Disease Consortium FSHD Rare Dad - Raymond Huml Rare Disease PodcastEffie ParksAugust 4, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 145 - Ensuring that the Patient and Caregiver Voice are Part of Clinical Trial Design and Engagement - Bridging the Gap with Industry with Shazia Ahmad Rare Disease PodcastEffie ParksJuly 28, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 052 - CTNNB1 Awareness Day - Rare Disease Family Meet-Up Effie ParksJuly 26, 2022
ONCE UPON A GENE - EPISODE 144 - Summer Surfing - Get On Top of the IEP Wave Rare Disease PodcastEffie ParksJuly 21, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 143 - A Rare Collection - I Will Never Forget Rare Disease PodcastEffie ParksJuly 14, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 051 - Back on Track - All Aboard the Inclusion Train Effie ParksJuly 12, 2022
ONCE UPON A GENE - EPISODE 142 - Half of the Day She's a Diversity Champion, the Other Half a Rare Disease Mom and Caregiver with Yosr Hamza Rare Disease PodcastEffie ParksJuly 7, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 141 - A Rare Mama Bear - Being a Single Parent and Adopting a Rare Disease Child with Epidermolysis Bullosa Rare Disease PodcastEffie ParksJune 30, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 050 - Global Genes RARE Disease Patient Advocacy Summit Effie ParksJune 28, 2022
ONCE UPON A GENE - EPISODE 140 - Picking the Brain of a Rare Disease Dad - with CTNNB1 Dadvocate - Casey Parks Rare Disease PodcastEffie ParksJune 23, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 139 - Remember Who You Are Rare Disease PodcastEffie ParksJune 16, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 138 - Chelsea's Hope Lafora Children Research Fund with Niki Markou and Jenifer Merriam Rare Disease PodcastEffie ParksJune 9, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 137 - Advancing Therapies for Rare Liver Diseases and Alagille Syndrome Rare Disease PodcastEffie ParksJune 2, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 136 - The Value of Intensive Therapy for Kids with Disabilities with Jessie Cline and Erin Garrison of Climb Intensive Pediatric Therapy Rare Disease PodcastEffie ParksMay 26, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 135 - A Rare Collection - Up At Night Rare Disease PodcastEffie ParksMay 19, 2022Rare Disease, Special Needs Podcast
