ONCE UPON A GENE - Episode 134 - The Critical Role of Newborn Screening - Rare Mom Alison Breitbarth and Infantile Pompe Disease Rare Disease PodcastEffie ParksMay 12, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 133 - The Unique Expertise of a Genetic Counselor Rare Disease PodcastEffie ParksMay 5, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 132 - Rare Disease Caregiving Post Childhood with Rare Mom and Primary Ciliary Dyskinesia Advocate Karen McEwen Rare Disease PodcastEffie ParksApril 28, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 131 - Kelley Coleman - Author of You Will Feel Better - A Guidebook for Rare Disease Parents Rare Disease PodcastEffie ParksApril 21, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 130 - A Rare Collection - A Penny For Your Thoughts Rare Disease PodcastEffie ParksApril 14, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 129 - Self Care for Your Healthcare with Ehlers Danlos Patient and Miss Wheelchair Washington - Sarah Tompkins Rare Disease PodcastEffie ParksApril 7, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 128 - Sisters’ Hope Foundation President and Founder Heidi Edwards on Recognizing ALSP Symptoms and the Importance of Genetic Testing Rare Disease PodcastEffie ParksMarch 31, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 127 - Building a Different Kind of Motherhood Experience Than We Had Anticipated with CDKL5 Deficiency Disorder Mom and Founder of Art For Hope Love Cure, Marissa Bishop Rare Disease PodcastEffie ParksMarch 30, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 126 - A Rare Collection - Unexpected Findings Rare Disease PodcastEffie ParksMarch 17, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 125 - A Very Rare and Very Real Adventure with DeSanto-Shinawi Syndrome Mom and Author of a Very Rare Adventure Katie Lloyd Rare Disease PodcastEffie ParksMarch 10, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 124 - Help Bring a Cure to GSD1B with Sophie's Hope Foundation Founder and Dadvocate Jamas LaFreniere Rare Disease PodcastEffie ParksMarch 3, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 123 - Figuring Out How to Infuse Meaning in the Days After the Loss of a Child Rare Disease PodcastEffie ParksFebruary 24, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 041 - Random Acts of Kindness in the Rare Community Effie ParksFebruary 22, 2022
ONCE UPON A GENE - Episode 122 - A Rare Collection - This is Us Rare Disease PodcastEffie ParksFebruary 17, 2022Rare Disease, Special Needs Podcast
