ONCE UPON A GENE - Episode 065 - Beginner’s Guide to Rare Disease- Anecdotes for Those Early Days of Diagnosis - Daniel DeFabio Rare Disease PodcastEffie ParksJanuary 14, 2021Rare Disease, Blau Syndrome, Special Needs Podcast
ONCE UPON A GENE - EPISODE 064- Seth Rotberg Founder of Our Odyssey and His Mental Health Surrounding a Huntington’s Disease Diagnosis Rare Disease PodcastEffie ParksJanuary 7, 2021Rare Disease, Blau Syndrome, Special Needs Podcast
ONCE UPON A GENE - EPISODE 063 - The Life of an Angel Diagnosed with Blau Syndrome with Cheryl-Lynn Townsin Rare Disease PodcastEffie ParksDecember 31, 2020Rare Disease, Blau Syndrome, Special Needs Podcast
ONCE UPON A GENE - EPISODE 061 - The Glass Child - Being a Sibling to My Rare Disease Sisters with Madison McLaughlin Effie ParksDecember 17, 2020
ONCE UPON A GENE - EPISODE 060 - Pediatric Occupational Therapy with OT4Lyfe - Sarah Putt Effie ParksDecember 10, 2020
ONCE UPON A GENE - EPISODE 059 - Palliative Care & Courageous Parents Network with Founder Blyth Lord Effie ParksDecember 3, 2020
ONCE UPON A GENE - EPISODE 057 - SLC13A5 - TESS Research Foundation with Kim Nye Effie ParksNovember 19, 2020
ONCE UPON A GENE - EPISODE 056 - Rare Leader Patricia Weltin, CEO, Beyond the Diagnosis Effie ParksNovember 12, 2020
ONCE UPON A GENE - EPISODE 055 - One Woman’s Kindness Sparks a Neighborhood To Do the Same Effie ParksNovember 5, 2020
ONCE UPON A GENE - EPISODE 054 - RARE - A Brand with a Purpose - Theresa Thomas and Kristine Hoestermann Effie ParksOctober 29, 2020
ONCE UPON A GENE - EPISODE 053 - Living with Chronic Pain - International Pain Foundation President Barby Ingle Effie ParksOctober 22, 2020
