Once Upon A Gene
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SDRareDiseaseDay Welcome Merch Podcast Events Blog About PRESS Contact
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SDRareDiseaseDayWelcomeMerchPodcastEventsBlogAboutPRESS Contact
Once Upon A Gene

Once Upon A Gene Podcast - click on an episode below to start listening!

ONCE UPON A GENE - EPISODE 052 - Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy and Owning Your Story
ONCE UPON A GENE - EPISODE 052 - Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy and Owning Your Story
Effie ParksOctober 15, 2020
ONCE UPON A GENE - EPISODE 051 - Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
ONCE UPON A GENE - EPISODE 051 - Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
Effie ParksOctober 8, 2020
ONCE UPON A GENE - EFFISODE 005
ONCE UPON A GENE - EFFISODE 005
Effie ParksOctober 6, 2020
ONCE UPON A GENE - EPISODE 050 - Reflecting on 50 Episodes with Effie and Casey
ONCE UPON A GENE - EPISODE 050 - Reflecting on 50 Episodes with Effie and Casey
Effie ParksOctober 1, 2020
ONCE UPON A GENE - EPISODE 049 -  Thanatophoric Skeletal Dysplasia with Ashequka Lacey
ONCE UPON A GENE - EPISODE 049 - Thanatophoric Skeletal Dysplasia with Ashequka Lacey
Effie ParksSeptember 24, 2020
ONCE UPON A GENE - EFFISODE 004
ONCE UPON A GENE - EFFISODE 004
Effie ParksSeptember 22, 2020
ONCE UPON A GENE - EPISODE 048 -  What is Chronically Surviving with Marcelle Longlade
ONCE UPON A GENE - EPISODE 048 - What is Chronically Surviving with Marcelle Longlade
Effie ParksSeptember 17, 2020
ONCE UPON A GENE - EPISODE 047 -  Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter
ONCE UPON A GENE - EPISODE 047 - Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter
Effie ParksSeptember 10, 2020
ONCE UPON A GENE - EFFISODE 003
ONCE UPON A GENE - EFFISODE 003
Effie ParksSeptember 8, 2020
ONCE UPON A GENE - EPISODE 046 -  A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
ONCE UPON A GENE - EPISODE 046 - A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
Effie ParksSeptember 3, 2020
ONCE UPON A GENE - EPISODE 045 - Two Disabled Dudes - Kyle Bryant and Sean Baumstark
ONCE UPON A GENE - EPISODE 045 - Two Disabled Dudes - Kyle Bryant and Sean Baumstark
Effie ParksAugust 27, 2020
ONCE UPON A GENE - BONUS EPISODE - Rare Together Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
ONCE UPON A GENE - BONUS EPISODE - Rare Together Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
Effie ParksAugust 26, 2020
ONCE UPON A GENE - EFFISODE 002
ONCE UPON A GENE - EFFISODE 002
Effie ParksAugust 24, 2020
ONCE UPON A GENE - EPISODE 044 - A Mother’s Crusade to Find a Cure for Her Son - Amber Freed
ONCE UPON A GENE - EPISODE 044 - A Mother’s Crusade to Find a Cure for Her Son - Amber Freed
Effie ParksAugust 20, 2020
ONCE UPON A GENE - EPISODE 043 - David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action
ONCE UPON A GENE - EPISODE 043 - David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action
Effie ParksAugust 13, 2020
ONCE UPON A GENE - EFFISODE 001
ONCE UPON A GENE - EFFISODE 001
Effie ParksAugust 11, 2020
ONCE UPON A GENE - EPISODE 042 - WSU ROAR - Responsibility, Opportunities, Advocacy and Respect with Lisa Henniger
ONCE UPON A GENE - EPISODE 042 - WSU ROAR - Responsibility, Opportunities, Advocacy and Respect with Lisa Henniger
Effie ParksAugust 6, 2020
ONCE UPON A GENE - EPISODE 041 - Time is Brain: SYNGAP Research Fund with Mike Graglia
ONCE UPON A GENE - EPISODE 041 - Time is Brain: SYNGAP Research Fund with Mike Graglia
Effie ParksJuly 30, 2020
ONCE UPON A GENE - EPISODE 040 - Physical and Emotional Well-Being for the Caregiver with Tyra Skibington
ONCE UPON A GENE - EPISODE 040 - Physical and Emotional Well-Being for the Caregiver with Tyra Skibington
Effie ParksJuly 23, 2020
ONCE UPON A GENE - EPISODE 039 - Next Steps: A Journey Through CRPS to an Above-the-Knee Amputee with Whitney Lavender
ONCE UPON A GENE - EPISODE 039 - Next Steps: A Journey Through CRPS to an Above-the-Knee Amputee with Whitney Lavender
Effie ParksJuly 16, 2020
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