ONCE UPON A GENE - EPISODE 174 - To the Moon and Back Rare Disease PodcastEffie ParksFebruary 17, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 173 - Honoring a Husband’s Legacy by Finishing His Work on a Documentary About Rare Disease Acute Flaccid Myelitis and Her Own Grief Along the Way with Sarah Potter Rare Disease PodcastEffie ParksFebruary 9, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 172 - From Cancer Biologist to Rare Disease Mom - Digging Into the Data to Better Understand SCN8A with Madeleine Oudin PhD - Professor of Biomedical Engineering at Tufts Rare Disease PodcastEffie ParksFebruary 2, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 171 - Never Give Up - Two Decades of Struggles From Diagnosing Their Children to Starting a Clinical Trial For Aspartylglucosaminuria with Rare Mom Julia Taravella Rare Disease PodcastEffie ParksJanuary 26, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 170 - New Beginnings Rare Disease PodcastEffie ParksJanuary 19, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 169 - Happiness Is Meant to Be Shared with Author, Storyteller, and NEMO dadvocate Andrés Treviño Rare Disease PodcastEffie ParksJanuary 12, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 168 - Being Brave, Curious and Motivated to Help Make a Difference with DLG4 Research Mama Payal Patel Rare Disease PodcastEffie ParksJanuary 5, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 167 - Care Team Prescription - The Importance of Clinical Pharmacists with Chase Palmer Rare Disease PodcastEffie ParksDecember 29, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 166 - A Focus On Patient Advocacy - Participation In Research and the Importance of an Engaged Patient Advocacy Group with Wendy Kay Chung, MD Rare Disease PodcastEffie ParksDecember 22, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 165 - A Rare Collection - Holiday Cheer Rare Disease PodcastEffie ParksDecember 15, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 164 - The Clinical Pharmacist - Why They Are A VIP For Our Care Team and How We Can Get to Know Them - With NARS1 Rare Disease Mom - Rachel Heilmann Rare Disease PodcastEffie ParksDecember 8, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 163 - How Far We've Come - A Look at the FOXG1 Research and Family Conference with Rare Mama and Co Founder Nicole Johnson Rare Disease PodcastEffie ParksDecember 1, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 162 - Your Career and Personal Life Collide - Smith Magenis Rare Disease Dad Gianluca Pirozzi Rare Disease PodcastEffie ParksNovember 24, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 161 - A Rare Collection - Beep, Beep, Beep Rare Disease PodcastEffie ParksNovember 17, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 160 - A Mom's Advocacy For Her Son Who Has Hemophilia B Led to Her Own Diagnosis - With Stormy Johnson Rare Disease PodcastEffie ParksNovember 10, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 159 - Social Security Disability Revealed - Why It's So Hard to Access Benefits and What You Can Do About It with Spencer Bishins Rare Disease PodcastEffie ParksNovember 3, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 158 - Medical Student - Urvi Gupta Joins the Global Genes Rare Compassion Program with Alexions Patient Advocacy Champion Wendy Erler Rare Disease PodcastEffie ParksOctober 27, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 157 - The Effects of Rare Disease on Relationships and How to Cope When You and Your Partner Have Different Strategies with KCNH1 Founder and Rare Mama Michaelle Jinnette Rare Disease PodcastEffie ParksOctober 20, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 156 - A Rare Collection - Batten Down the Hatches Rare Disease PodcastEffie ParksOctober 13, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 155 - CRELD1 Dadvocate Paying the Ultimate Price - Seeking Diagnosis for His Two Children, and Raising Awareness with Adam Clatworthy Rare Disease PodcastEffie ParksOctober 6, 2022Rare Disease, Special Needs Podcast
