ONCE UPON A GENE - EPISODE 160 - A Mom's Advocacy For Her Son Who Has Hemophilia B Led to Her Own Diagnosis - With Stormy Johnson Rare Disease PodcastEffie ParksNovember 10, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 159 - Social Security Disability Revealed - Why It's So Hard to Access Benefits and What You Can Do About It with Spencer Bishins Rare Disease PodcastEffie ParksNovember 3, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 158 - Medical Student - Urvi Gupta Joins the Global Genes Rare Compassion Program with Alexions Patient Advocacy Champion Wendy Erler Rare Disease PodcastEffie ParksOctober 27, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 157 - The Effects of Rare Disease on Relationships and How to Cope When You and Your Partner Have Different Strategies with KCNH1 Founder and Rare Mama Michaelle Jinnette Rare Disease PodcastEffie ParksOctober 20, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 156 - A Rare Collection - Batten Down the Hatches Rare Disease PodcastEffie ParksOctober 13, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 155 - CRELD1 Dadvocate Paying the Ultimate Price - Seeking Diagnosis for His Two Children, and Raising Awareness with Adam Clatworthy Rare Disease PodcastEffie ParksOctober 6, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 154 - A Groundbreaking Gene Therapy In Record Time to Cure His Son with SPG50 Sets a New Course For Future Rare Disease Treatments with Terry Pirovalakis Rare Disease PodcastEffie ParksSeptember 29, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 153 - Improving Inclusion Practices in Schools with the Inclusive Educator - Bre Gastaldi Rare Disease PodcastEffie ParksSeptember 22, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 152 - A Rare Collection - Underestimated Rare Disease PodcastEffie ParksSeptember 15, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 151 - Rare Friends Forever - Hanging Out and Showing Some Love to Brene Brown with Katie Lloyd and Adam Johnson Rare Disease PodcastEffie ParksSeptember 8, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 149 - Together We Can Cure Single-Gene Disorders Starting with PGAP3 - Moonshot - An Ambitious and Innovative Project with Geri and Zach Landman Rare Disease PodcastEffie ParksAugust 25, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 148 - Rare Disease Siblings, The Glass Children - Bulletproof and Shattered - With SMA Sibling Cara Freedman Rare Disease PodcastEffie ParksAugust 18, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 147 - A Rare Collection - Easier Said Than Done Rare Disease PodcastEffie ParksAugust 11, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 146 - When Your Career and Personal Life Collide - VP of Medical and Science Strategy and Head of Syneos Health's Rare Disease Consortium FSHD Rare Dad - Raymond Huml Rare Disease PodcastEffie ParksAugust 4, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 145 - Ensuring that the Patient and Caregiver Voice are Part of Clinical Trial Design and Engagement - Bridging the Gap with Industry with Shazia Ahmad Rare Disease PodcastEffie ParksJuly 28, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 144 - Summer Surfing - Get On Top of the IEP Wave Rare Disease PodcastEffie ParksJuly 21, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 143 - A Rare Collection - I Will Never Forget Rare Disease PodcastEffie ParksJuly 14, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 142 - Half of the Day She's a Diversity Champion, the Other Half a Rare Disease Mom and Caregiver with Yosr Hamza Rare Disease PodcastEffie ParksJuly 7, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 141 - A Rare Mama Bear - Being a Single Parent and Adopting a Rare Disease Child with Epidermolysis Bullosa Rare Disease PodcastEffie ParksJune 30, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 140 - Picking the Brain of a Rare Disease Dad - with CTNNB1 Dadvocate - Casey Parks Rare Disease PodcastEffie ParksJune 23, 2022Rare Disease, Special Needs Podcast
