ONCE UPON A GENE - Episode 099 - Strength and Inspiration Found Through Rare Disease for Advocacy and a Patient First Movement with CEO of Optime Care - Donovan Quill Rare Disease PodcastEffie ParksSeptember 9, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 098 - Five Common Errors Made by Recently Diagnosed, Emotionally Overwhelmed Families Without Monetary Resources or Connections with Perlara Founder and CEO Rare Disease PodcastEffie ParksSeptember 2, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 097 - A Mother's Story of Finding Your People, Accepting a Diagnosis and Loving Her Kid for Exactly Who She is with Jordan's Guardian Angels Mom - Carole Bakhos Rare Disease PodcastEffie ParksAugust 26, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 096 - Finding Peace and New Energy to Dig Deeper After 18 Years Undiagnosed with Billie Short Rare Disease PodcastEffie ParksAugust 19, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 095 - A Rare Collection- Skin in the Game with Adam Johnson, Nathan Peck and Marni Cartelli Rare Disease PodcastEffie ParksAugust 12, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 094 - The 12 Commandments to guide you when you're starting a rare disease patient advocacy group. With Nasha Fitter and Mike Graglia Rare Disease PodcastEffie ParksAugust 5, 2021Once Upon A GeneRare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 093 - Leading the World Gene Therapy Program for CTNNB1 With Fellow Rare Mama - Špela Miroševič Rare Disease PodcastEffie ParksJuly 29, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 092 - Enabling Rare Disease Treatments with Sanath Kumar Ramesh - Founder & CEO of OpenTreatments Rare Disease PodcastEffie ParksJuly 22, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff Rare Disease PodcastEffie ParksJuly 15, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D Rare Disease PodcastEffie ParksJuly 8, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 089 - Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle Rare Disease PodcastEffie ParksJuly 1, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 088 - Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan Halley Rare Disease PodcastEffie ParksJune 24, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 087 - A Rare Collection - Superheroes Rare Disease PodcastEffie ParksJune 17, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 086 - Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig Rare Disease PodcastEffie ParksJune 10, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 085 - Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward Rare Disease PodcastEffie ParksJune 3, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 084 - Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O’Loughlin Rare Disease PodcastEffie ParksMay 27, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 083 - Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell Rare Disease PodcastEffie ParksMay 20, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 082 - Rare Disease - The Ultimate Special Teams with Uplifting Athletes with Rob Long Rare Disease PodcastEffie ParksMay 13, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 081 - Rare Disease Adoption with Josh and Monica Poynter Rare Disease PodcastEffie ParksMay 6, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 080 - Rare Disease and Grief - Its Ok That You're Not Ok with Megan Devine Rare Disease PodcastEffie ParksApril 29, 2021Rare Disease, Special Needs Podcast
