Once Upon A Gene
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Once Upon A Gene

Once Upon A Gene Podcast - click on an episode below to start listening!

ONCE UPON A GENE - EPISODE 245 - Finding Strength in Friendship - Building In-Person Connections for Special Needs Moms with Colorado Mama Tribe - Mariah Gillaspie
ONCE UPON A GENE - EPISODE 245 - Finding Strength in Friendship - Building In-Person Connections for Special Needs Moms with Colorado Mama Tribe - Mariah Gillaspie
Rare Disease PodcastEffie ParksSeptember 19, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 243 - Chasing Glimmers - Electric Love Disability Retreats
ONCE UPON A GENE - EPISODE 243 - Chasing Glimmers - Electric Love Disability Retreats
Rare Disease PodcastEffie ParksSeptember 12, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 242 - Choosing Friends as a Rare Disease Parent - Building a Supportive Circle with Genuine Connections
ONCE UPON A GENE - EPISODE 242 - Choosing Friends as a Rare Disease Parent - Building a Supportive Circle with Genuine Connections
Rare Disease PodcastEffie ParksSeptember 5, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 241 - Chasing Glimmers - What's Glimmering with Katie Lloyd
ONCE UPON A GENE - EPISODE 241 - Chasing Glimmers - What's Glimmering with Katie Lloyd
Rare Disease PodcastEffie ParksAugust 29, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 240 - A Mother's Mission - Project Baby Lion, ASO Therapy and the TNP02 Foundation with Yiwei She
ONCE UPON A GENE - EPISODE 240 - A Mother's Mission - Project Baby Lion, ASO Therapy and the TNP02 Foundation with Yiwei She
Rare Disease PodcastEffie ParksAugust 22, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 239 - Navigating Physical and Emotional Stress and Noticing Where It Shows Up In Our Body As A Rare Disease Caregiver - With Christy Foster
ONCE UPON A GENE - EPISODE 239 - Navigating Physical and Emotional Stress and Noticing Where It Shows Up In Our Body As A Rare Disease Caregiver - With Christy Foster
Rare Disease PodcastEffie ParksAugust 15, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 238 - Where the Glimmers Can Surface
ONCE UPON A GENE - EPISODE 238 - Where the Glimmers Can Surface
Rare Disease PodcastEffie ParksAugust 8, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 237 - Join Us for The Global Genes Week In Rare
ONCE UPON A GENE - EPISODE 237 - Join Us for The Global Genes Week In Rare
Rare Disease PodcastEffie ParksAugust 1, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 236 - Rare Disease Research - Insights from Charles River Labs with Roxana Redis and David Fischer
ONCE UPON A GENE - EPISODE 236 - Rare Disease Research - Insights from Charles River Labs with Roxana Redis and David Fischer
Rare Disease PodcastEffie ParksJuly 25, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 235 - Rare Connections in NMOSD (Neuromyelitis Optics) - Finding Strength in Community and the Power in Asking for Help with Craig Klein
ONCE UPON A GENE - EPISODE 235 - Rare Connections in NMOSD (Neuromyelitis Optics) - Finding Strength in Community and the Power in Asking for Help with Craig Klein
Rare Disease PodcastEffie ParksJuly 18, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 234 - Chasing Glimmers - Illuminating Hope and Lessons in the Rare Disease Journey - Finding Glimmers for a Happier, Healthier Life with Katie Lloyd
ONCE UPON A GENE - EPISODE 234 - Chasing Glimmers - Illuminating Hope and Lessons in the Rare Disease Journey - Finding Glimmers for a Happier, Healthier Life with Katie Lloyd
Rare Disease PodcastEffie ParksJuly 11, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 233 - Are You Worried About Your Baby's Development - Enroll in Project FIND-OUT - You May Qualify for Free Whole Genome Sequencing
ONCE UPON A GENE - EPISODE 233 - Are You Worried About Your Baby's Development - Enroll in Project FIND-OUT - You May Qualify for Free Whole Genome Sequencing
Rare Disease PodcastEffie ParksJuly 4, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 232 - Understanding Genetic Counseling - Essential Insights for Parents – Navigating Appointments, Referrals, Testing, and Insurance with Expert Abby Turnwald MS CGC
ONCE UPON A GENE - EPISODE 232 - Understanding Genetic Counseling - Essential Insights for Parents – Navigating Appointments, Referrals, Testing, and Insurance with Expert Abby Turnwald MS CGC
Rare Disease PodcastEffie ParksJune 13, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 231 - The Power of Genetic Diagnosis - More Than Just a Label
ONCE UPON A GENE - EPISODE 231 - The Power of Genetic Diagnosis - More Than Just a Label
Rare Disease PodcastEffie ParksJune 6, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 230 - Balancing Rare Disease Advocacy and Family - Navigating the Complexities and Embracing Imperfections with Nikki Stusick
ONCE UPON A GENE - EPISODE 230 - Balancing Rare Disease Advocacy and Family - Navigating the Complexities and Embracing Imperfections with Nikki Stusick
Rare Disease PodcastEffie ParksMay 23, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 229 - Uniting Strengths - Rare Disease Collaboration on a Shared Patient Registry Through Sanford Cords with Cure Mito and Hope for PDCD
ONCE UPON A GENE - EPISODE 229 - Uniting Strengths - Rare Disease Collaboration on a Shared Patient Registry Through Sanford Cords with Cure Mito and Hope for PDCD
Rare Disease PodcastEffie ParksMay 16, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 228 - Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breathroughs, and the Every Cure Initiative with Dr. David Fajgenbaum
ONCE UPON A GENE - EPISODE 228 - Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breathroughs, and the Every Cure Initiative with Dr. David Fajgenbaum
Rare Disease PodcastEffie ParksMay 9, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 227 - Bringing Balance Back to the Language of Disability from The Special Needs Mom Podcast with Kara Ryska
ONCE UPON A GENE - EPISODE 227 - Bringing Balance Back to the Language of Disability from The Special Needs Mom Podcast with Kara Ryska
Rare Disease PodcastEffie ParksApril 25, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 226 - From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland
ONCE UPON A GENE - EPISODE 226 - From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland
Rare Disease PodcastEffie ParksApril 18, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 224 - The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed
ONCE UPON A GENE - EPISODE 224 - The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed
Rare Disease PodcastEffie ParksApril 4, 2024Rare Disease, Special Needs Podcast
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