ONCE UPON A GENE - EPISODE 239 - Navigating Physical and Emotional Stress and Noticing Where It Shows Up In Our Body As A Rare Disease Caregiver - With Christy Foster Rare Disease PodcastEffie ParksAugust 15, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 238 - Where the Glimmers Can Surface Rare Disease PodcastEffie ParksAugust 8, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 237 - Join Us for The Global Genes Week In Rare Rare Disease PodcastEffie ParksAugust 1, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 236 - Rare Disease Research - Insights from Charles River Labs with Roxana Redis and David Fischer Rare Disease PodcastEffie ParksJuly 25, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 235 - Rare Connections in NMOSD (Neuromyelitis Optics) - Finding Strength in Community and the Power in Asking for Help with Craig Klein Rare Disease PodcastEffie ParksJuly 18, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 234 - Chasing Glimmers - Illuminating Hope and Lessons in the Rare Disease Journey - Finding Glimmers for a Happier, Healthier Life with Katie Lloyd Rare Disease PodcastEffie ParksJuly 11, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 233 - Are You Worried About Your Baby's Development - Enroll in Project FIND-OUT - You May Qualify for Free Whole Genome Sequencing Rare Disease PodcastEffie ParksJuly 4, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 232 - Understanding Genetic Counseling - Essential Insights for Parents – Navigating Appointments, Referrals, Testing, and Insurance with Expert Abby Turnwald MS CGC Rare Disease PodcastEffie ParksJune 13, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 231 - The Power of Genetic Diagnosis - More Than Just a Label Rare Disease PodcastEffie ParksJune 6, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 230 - Balancing Rare Disease Advocacy and Family - Navigating the Complexities and Embracing Imperfections with Nikki Stusick Rare Disease PodcastEffie ParksMay 23, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 229 - Uniting Strengths - Rare Disease Collaboration on a Shared Patient Registry Through Sanford Cords with Cure Mito and Hope for PDCD Rare Disease PodcastEffie ParksMay 16, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 228 - Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breathroughs, and the Every Cure Initiative with Dr. David Fajgenbaum Rare Disease PodcastEffie ParksMay 9, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 227 - Bringing Balance Back to the Language of Disability from The Special Needs Mom Podcast with Kara Ryska Rare Disease PodcastEffie ParksApril 25, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 226 - From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland Rare Disease PodcastEffie ParksApril 18, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 224 - The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed Rare Disease PodcastEffie ParksApril 4, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 223 - Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio Rare Disease PodcastEffie ParksMarch 28, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 222 - Krabbe Disease with Kasey Feldt Rare Disease PodcastEffie ParksMarch 21, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 221 - BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay Rare Disease PodcastEffie ParksMarch 14, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 220 - A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action Rare Disease PodcastEffie ParksMarch 7, 2024Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 219 - Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini Rare Disease PodcastEffie ParksFebruary 29, 2024Rare Disease, Special Needs Podcast
