ONCE UPON A GENE - EPISODE 203 - These Two Rare Disease Parents Never Met Until Now and Have Everything In Common - Chronic Compassion Chronicles with Kim Gilsdorf and Daniel DeFabio Rare Disease PodcastEffie ParksOctober 19, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 202 - Utilizing Child Life Specialists - Empowering Rare Disease and Medically Complex Families in Hospitals Nationwide with Child Life On Call Founder - Katie Taylor Rare Disease PodcastEffie ParksOctober 12, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 201 - Five Advocacy Aces Share Their Conference Commandments Rare Disease PodcastEffie ParksOctober 5, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 200 - Fundraising Strategies for Patient Advocacy Organizations Raising Money for Rare Disease Research with Lindsay Stevens Rare Disease PodcastEffie ParksSeptember 28, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 199 - Navigating as a Rare Mom - Expert Insights into Special Needs Financial Planning with Mary McDirmid from Special Abilities Network Rare Disease PodcastEffie ParksSeptember 21, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 198 - Advocating with Heart - Striking the Balance Between Medical Insights and Personal Narratives - A Tribute to Valerie Marie with RING14 Co-Founder Yssa Dean DeWoody Rare Disease PodcastEffie ParksSeptember 14, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 197 - Rare Disease Dad Chronicles - Ryan Sheedy Rare Disease PodcastEffie ParksSeptember 7, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 072 - Summer Camp for Medically Complex Kids Effie ParksSeptember 5, 2023
ONCE UPON A GENE - EPISODE 196 - School's Out for the Summer Rare Disease PodcastEffie ParksJuly 27, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 195 - Anecdotes From a Rare Disease Dad of an Adult Son with NR4A2 with Joe Henry Rare Disease PodcastEffie ParksJuly 20, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 194 - A Guide for Rare Disease Patient Advocacy Groups - Choosing and Designing a Patient Registry with Sophia Zilber Rare Disease PodcastEffie ParksJuly 13, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 193 - Claudia Gonzaga Jauregui Rare Disease PodcastEffie ParksJuly 6, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 192 - A Tale of a Gene Therapy that Cures her Daughter with AADC Deficiency with Carolina Moreno Rare Disease PodcastEffie ParksJune 22, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 191 - A Father's Day Special - Amidst the Storm Rare Disease PodcastEffie ParksJune 15, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 190 - SCN8A Rare Mom - The Inch Stone Project and DEE-P Connections Rare Disease PodcastEffie ParksJune 8, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 189 - Developing Personalized Therapeutics for Ultra Rare Patients with La Jolla Labs CEO Jeff Milton Rare Disease PodcastEffie ParksJune 1, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 188 - Rare Mom, Scientist and Co-Founder of the MAST Genes Research Foundation with Dr. Kim Aldinger Rare Disease PodcastEffie ParksMay 25, 2023Rare Disease, Special Needs Podcast
