ONCE UPON A GENE - EPISODE 175 - Every Patient Matters - Discovering, Developing, and Providing Experimental ASO Treatments to Nano-Rare Patients for Free with n-Lorem Founder and CEO Stan Crooke Rare Disease PodcastEffie ParksFebruary 23, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 174 - To the Moon and Back Rare Disease PodcastEffie ParksFebruary 17, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 173 - Honoring a Husband’s Legacy by Finishing His Work on a Documentary About Rare Disease Acute Flaccid Myelitis and Her Own Grief Along the Way with Sarah Potter Rare Disease PodcastEffie ParksFebruary 9, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 172 - From Cancer Biologist to Rare Disease Mom - Digging Into the Data to Better Understand SCN8A with Madeleine Oudin PhD - Professor of Biomedical Engineering at Tufts Rare Disease PodcastEffie ParksFebruary 2, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 171 - Never Give Up - Two Decades of Struggles From Diagnosing Their Children to Starting a Clinical Trial For Aspartylglucosaminuria with Rare Mom Julia Taravella Rare Disease PodcastEffie ParksJanuary 26, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 170 - New Beginnings Rare Disease PodcastEffie ParksJanuary 19, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 169 - Happiness Is Meant to Be Shared with Author, Storyteller, and NEMO dadvocate Andrés Treviño Rare Disease PodcastEffie ParksJanuary 12, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 168 - Being Brave, Curious and Motivated to Help Make a Difference with DLG4 Research Mama Payal Patel Rare Disease PodcastEffie ParksJanuary 5, 2023Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 167 - Care Team Prescription - The Importance of Clinical Pharmacists with Chase Palmer Rare Disease PodcastEffie ParksDecember 29, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 166 - A Focus On Patient Advocacy - Participation In Research and the Importance of an Engaged Patient Advocacy Group with Wendy Kay Chung, MD Rare Disease PodcastEffie ParksDecember 22, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 165 - A Rare Collection - Holiday Cheer Rare Disease PodcastEffie ParksDecember 15, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 062 - Presents, Portraits and Beyond the Diagnosis Effie ParksDecember 13, 2022
ONCE UPON A GENE - EPISODE 164 - The Clinical Pharmacist - Why They Are A VIP For Our Care Team and How We Can Get to Know Them - With NARS1 Rare Disease Mom - Rachel Heilmann Rare Disease PodcastEffie ParksDecember 8, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 163 - How Far We've Come - A Look at the FOXG1 Research and Family Conference with Rare Mama and Co Founder Nicole Johnson Rare Disease PodcastEffie ParksDecember 1, 2022Rare Disease, Special Needs Podcast
