Once Upon A Gene
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Once Upon A Gene

Once Upon A Gene Podcast - click on an episode below to start listening!

ONCE UPON A GENE - Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff
ONCE UPON A GENE - Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff
Rare Disease PodcastEffie ParksJuly 15, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 025 - Family Camp, Annoying Brothers, and the Doom of Packing
ONCE UPON A GENE - EFFISODE 025 - Family Camp, Annoying Brothers, and the Doom of Packing
Effie ParksJuly 13, 2021
ONCE UPON A GENE - Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D
ONCE UPON A GENE - Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D
Rare Disease PodcastEffie ParksJuly 8, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 089 - Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle
ONCE UPON A GENE - Episode 089 - Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle
Rare Disease PodcastEffie ParksJuly 1, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 024 - Heatwaves and a Happy Birthday
ONCE UPON A GENE - EFFISODE 024 - Heatwaves and a Happy Birthday
Effie ParksJune 29, 2021
ONCE UPON A GENE - Episode 088 - Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan Halley
ONCE UPON A GENE - Episode 088 - Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan Halley
Rare Disease PodcastEffie ParksJune 24, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 087 - A Rare Collection - Superheroes
ONCE UPON A GENE - Episode 087 - A Rare Collection - Superheroes
Rare Disease PodcastEffie ParksJune 17, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 023 - Making Cents of it All
ONCE UPON A GENE - EFFISODE 023 - Making Cents of it All
Effie ParksJune 15, 2021
ONCE UPON A GENE - Episode 086 - Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig
ONCE UPON A GENE - Episode 086 - Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig
Rare Disease PodcastEffie ParksJune 10, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 085 - Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward
ONCE UPON A GENE - Episode 085 - Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward
Rare Disease PodcastEffie ParksJune 3, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 022 - Putting the Play in Playground with DadVocate - Casey Parks
ONCE UPON A GENE - EFFISODE 022 - Putting the Play in Playground with DadVocate - Casey Parks
Effie ParksJune 1, 2021
ONCE UPON A GENE - Episode 084 - Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O’Loughlin
ONCE UPON A GENE - Episode 084 - Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O’Loughlin
Rare Disease PodcastEffie ParksMay 27, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 083 - Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
ONCE UPON A GENE - Episode 083 - Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
Rare Disease PodcastEffie ParksMay 20, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 021 - Unexpected Moments in the Stairwell
ONCE UPON A GENE - EFFISODE 021 - Unexpected Moments in the Stairwell
Effie ParksMay 18, 2021
ONCE UPON A GENE - Episode 082 - Rare Disease - The Ultimate Special Teams with Uplifting Athletes with Rob Long
ONCE UPON A GENE - Episode 082 - Rare Disease - The Ultimate Special Teams with Uplifting Athletes with Rob Long
Rare Disease PodcastEffie ParksMay 13, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 081 - Rare Disease Adoption with Josh and Monica Poynter
ONCE UPON A GENE - Episode 081 - Rare Disease Adoption with Josh and Monica Poynter
Rare Disease PodcastEffie ParksMay 6, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 020 - Empathy Puts Some Pep in Your Step
ONCE UPON A GENE - EFFISODE 020 - Empathy Puts Some Pep in Your Step
Effie ParksMay 3, 2021
ONCE UPON A GENE - Episode 080 - Rare Disease and Grief - Its Ok That You're Not Ok with Megan Devine
ONCE UPON A GENE - Episode 080 - Rare Disease and Grief - Its Ok That You're Not Ok with Megan Devine
Rare Disease PodcastEffie ParksApril 29, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 079 - Creating Space for Mental Health for Men Living with Rare Diseases with David Ross
ONCE UPON A GENE - Episode 079 - Creating Space for Mental Health for Men Living with Rare Diseases with David Ross
Rare Disease PodcastEffie ParksApril 22, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EFFISODE 019 - Adventures in the Grocery Store
ONCE UPON A GENE - EFFISODE 019 - Adventures in the Grocery Store
Effie ParksApril 20, 2021
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