ONCE UPON A GENE - EPISODE 156 - A Rare Collection - Batten Down the Hatches Rare Disease PodcastEffie ParksOctober 13, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 155 - CRELD1 Dadvocate Paying the Ultimate Price - Seeking Diagnosis for His Two Children, and Raising Awareness with Adam Clatworthy Rare Disease PodcastEffie ParksOctober 6, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 154 - A Groundbreaking Gene Therapy In Record Time to Cure His Son with SPG50 Sets a New Course For Future Rare Disease Treatments with Terry Pirovalakis Rare Disease PodcastEffie ParksSeptember 29, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 153 - Improving Inclusion Practices in Schools with the Inclusive Educator - Bre Gastaldi Rare Disease PodcastEffie ParksSeptember 22, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 152 - A Rare Collection - Underestimated Rare Disease PodcastEffie ParksSeptember 15, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 151 - Rare Friends Forever - Hanging Out and Showing Some Love to Brene Brown with Katie Lloyd and Adam Johnson Rare Disease PodcastEffie ParksSeptember 8, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 149 - Together We Can Cure Single-Gene Disorders Starting with PGAP3 - Moonshot - An Ambitious and Innovative Project with Geri and Zach Landman Rare Disease PodcastEffie ParksAugust 25, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 148 - Rare Disease Siblings, The Glass Children - Bulletproof and Shattered - With SMA Sibling Cara Freedman Rare Disease PodcastEffie ParksAugust 18, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 147 - A Rare Collection - Easier Said Than Done Rare Disease PodcastEffie ParksAugust 11, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 146 - When Your Career and Personal Life Collide - VP of Medical and Science Strategy and Head of Syneos Health's Rare Disease Consortium FSHD Rare Dad - Raymond Huml Rare Disease PodcastEffie ParksAugust 4, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 145 - Ensuring that the Patient and Caregiver Voice are Part of Clinical Trial Design and Engagement - Bridging the Gap with Industry with Shazia Ahmad Rare Disease PodcastEffie ParksJuly 28, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 144 - Summer Surfing - Get On Top of the IEP Wave Rare Disease PodcastEffie ParksJuly 21, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 143 - A Rare Collection - I Will Never Forget Rare Disease PodcastEffie ParksJuly 14, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 142 - Half of the Day She's a Diversity Champion, the Other Half a Rare Disease Mom and Caregiver with Yosr Hamza Rare Disease PodcastEffie ParksJuly 7, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 141 - A Rare Mama Bear - Being a Single Parent and Adopting a Rare Disease Child with Epidermolysis Bullosa Rare Disease PodcastEffie ParksJune 30, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 140 - Picking the Brain of a Rare Disease Dad - with CTNNB1 Dadvocate - Casey Parks Rare Disease PodcastEffie ParksJune 23, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 139 - Remember Who You Are Rare Disease PodcastEffie ParksJune 16, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 138 - Chelsea's Hope Lafora Children Research Fund with Niki Markou and Jenifer Merriam Rare Disease PodcastEffie ParksJune 9, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 137 - Advancing Therapies for Rare Liver Diseases and Alagille Syndrome Rare Disease PodcastEffie ParksJune 2, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 136 - The Value of Intensive Therapy for Kids with Disabilities with Jessie Cline and Erin Garrison of Climb Intensive Pediatric Therapy Rare Disease PodcastEffie ParksMay 26, 2022Rare Disease, Special Needs Podcast
