ONCE UPON A GENE - EPISODE 252- Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy
Links & Resources:
Follow Their Journey on Social Media
Facebook: Paxtons Pioneers
Instagram: Paxtons_Pioneers
KCAL News Story
Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage
P.S. If this episode resonates, share it with another caregiver who might need it. We’re stronger when we remind each other we’re not alone.
💜 Effie
CONNECT WITH EFFIE PARKS
Content Link Block
Select a page and create a visual link to it.
Learn more