ONCE UPON A GENE - EPISODE 146 - When Your Career and Personal Life Collide - VP of Medical and Science Strategy and Head of Syneos Health's Rare Disease Consortium FSHD Rare Dad - Raymond Huml Rare Disease PodcastEffie ParksAugust 4, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 145 - Ensuring that the Patient and Caregiver Voice are Part of Clinical Trial Design and Engagement - Bridging the Gap with Industry with Shazia Ahmad Rare Disease PodcastEffie ParksJuly 28, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 144 - Summer Surfing - Get On Top of the IEP Wave Rare Disease PodcastEffie ParksJuly 21, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 143 - A Rare Collection - I Will Never Forget Rare Disease PodcastEffie ParksJuly 14, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 142 - Half of the Day She's a Diversity Champion, the Other Half a Rare Disease Mom and Caregiver with Yosr Hamza Rare Disease PodcastEffie ParksJuly 7, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 141 - A Rare Mama Bear - Being a Single Parent and Adopting a Rare Disease Child with Epidermolysis Bullosa Rare Disease PodcastEffie ParksJune 30, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 140 - Picking the Brain of a Rare Disease Dad - with CTNNB1 Dadvocate - Casey Parks Rare Disease PodcastEffie ParksJune 23, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 139 - Remember Who You Are Rare Disease PodcastEffie ParksJune 16, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 138 - Chelsea's Hope Lafora Children Research Fund with Niki Markou and Jenifer Merriam Rare Disease PodcastEffie ParksJune 9, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - EPISODE 137 - Advancing Therapies for Rare Liver Diseases and Alagille Syndrome Rare Disease PodcastEffie ParksJune 2, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 136 - The Value of Intensive Therapy for Kids with Disabilities with Jessie Cline and Erin Garrison of Climb Intensive Pediatric Therapy Rare Disease PodcastEffie ParksMay 26, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 135 - A Rare Collection - Up At Night Rare Disease PodcastEffie ParksMay 19, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 134 - The Critical Role of Newborn Screening - Rare Mom Alison Breitbarth and Infantile Pompe Disease Rare Disease PodcastEffie ParksMay 12, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 133 - The Unique Expertise of a Genetic Counselor Rare Disease PodcastEffie ParksMay 5, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 132 - Rare Disease Caregiving Post Childhood with Rare Mom and Primary Ciliary Dyskinesia Advocate Karen McEwen Rare Disease PodcastEffie ParksApril 28, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 131 - Kelley Coleman - Author of You Will Feel Better - A Guidebook for Rare Disease Parents Rare Disease PodcastEffie ParksApril 21, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 130 - A Rare Collection - A Penny For Your Thoughts Rare Disease PodcastEffie ParksApril 14, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 129 - Self Care for Your Healthcare with Ehlers Danlos Patient and Miss Wheelchair Washington - Sarah Tompkins Rare Disease PodcastEffie ParksApril 7, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 128 - Sisters’ Hope Foundation President and Founder Heidi Edwards on Recognizing ALSP Symptoms and the Importance of Genetic Testing Rare Disease PodcastEffie ParksMarch 31, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 127 - Building a Different Kind of Motherhood Experience Than We Had Anticipated with CDKL5 Deficiency Disorder Mom and Founder of Art For Hope Love Cure, Marissa Bishop Rare Disease PodcastEffie ParksMarch 30, 2022Rare Disease, Special Needs Podcast
