ONCE UPON A GENE - Episode 126 - A Rare Collection - Unexpected Findings Rare Disease PodcastEffie ParksMarch 17, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 125 - A Very Rare and Very Real Adventure with DeSanto-Shinawi Syndrome Mom and Author of a Very Rare Adventure Katie Lloyd Rare Disease PodcastEffie ParksMarch 10, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 124 - Help Bring a Cure to GSD1B with Sophie's Hope Foundation Founder and Dadvocate Jamas LaFreniere Rare Disease PodcastEffie ParksMarch 3, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 123 - Figuring Out How to Infuse Meaning in the Days After the Loss of a Child Rare Disease PodcastEffie ParksFebruary 24, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 122 - A Rare Collection - This is Us Rare Disease PodcastEffie ParksFebruary 17, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 121 - Caregiver Mental Health and Physical Wellbeing with Advocate and Co-Founder of Hello Sleuth - Sehreen Noor Ali Rare Disease PodcastEffie ParksFebruary 10, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 120 - What Happens Now - Baby Boy is a Medical Miracle After Being Treated for Spinal Muscular Atrophy Type 1 with Kathryn Alexander Rare Disease PodcastEffie ParksFebruary 3, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 119 - One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn Alexander Rare Disease PodcastEffie ParksJanuary 27, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 118 - Ambiguous Medical Plans - How to Figure Out a System Even When it Seems Impossible with Parvathy Raman Krishnan Rare Disease PodcastEffie ParksJanuary 20, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 117 - A Rare Collection - New Beginnings Rare Disease PodcastEffie ParksJanuary 13, 2022Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 116 - A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke Rosen Rare Disease PodcastEffie ParksJanuary 6, 2022Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 115 - Create Conversation, Community, and Change with Author of Loving You Big - Leah Moore Rare Disease PodcastEffie ParksDecember 30, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 114 - The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman Rare Disease PodcastEffie ParksDecember 23, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 113 - A Rare Collection - Lullabies Rare Disease PodcastEffie ParksDecember 16, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 112 - Being Mindful of the Sibling Experience with Founder of We Are Brave Together - Jessica Patay Rare Disease PodcastEffie ParksDecember 9, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 111 - The Importance of Newborn Screening in Every State with ALD Alliance Founder Elisa Seeger Rare Disease PodcastEffie ParksDecember 2, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 110 - Turkey Soup for the Soul and Stories About Rare Unicorns Who Show Up in Our Lives Rare Disease PodcastEffie ParksNovember 25, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 109 - A Rare Collection - What I Know For Sure with Noah Siedman, Grayson Skibington and Nash Hawkins Rare Disease PodcastEffie ParksNovember 18, 2021Rare Disease, Special Needs Podcast
ONCE UPON A GENE - Episode 108 - Finding Hope: From Diagnosis to Action - LMNA Related Congenital Muscular Dystrophy - Hannah Lowe Rare Disease PodcastEffie ParksNovember 11, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
ONCE UPON A GENE - Episode 107 - The Joy Doesn't Need to be Ambiguous Even Though The Grief Is - Rare MERRF Syndrome Mom Jessica Fein Rare Disease PodcastEffie ParksNovember 4, 2021Once Upon A GeneRare Disease, Special Needs Podcast, Books
